Moyamoya Disease Post-Surgical Care: Essential Guidelines for Family Members

After surgery for Moyamoya disease, proper postoperative care plays a crucial role in ensuring a smooth recovery and minimizing complications. Family members are key caregivers during this period and must remain vigilant, closely monitoring the patient's condition and promptly communicating any concerns to the medical team. Active involvement from loved ones not only supports physical healing but also boosts emotional well-being.

Understanding Common Post-Surgical Symptoms

It's normal for patients to experience certain reactions after Moyamoya surgery. Being informed about these helps reduce unnecessary anxiety and ensures timely action when needed.

Managing Seizure Risks

Seizures can occur following neurological procedures. If the patient experiences a seizure, caregivers should immediately position them on their side to prevent choking and ensure airway safety. Placing a soft cloth or gauze between the teeth—without using fingers—can help avoid tongue biting. Never restrain the person during convulsions. After the episode, contact the healthcare provider to assess whether medication adjustments are necessary.

Monitoring for Fever

Fever may develop post-surgery due to inflammation or infection. While mild temperature increases can be part of the body's natural healing process, persistent or high-grade fever should not be ignored. Notify the medical team promptly so they can evaluate the cause and initiate appropriate treatment, such as antibiotics or antipyretics, if required.

Wound Care and Swelling Management

Some degree of swelling around the surgical site is expected and typically peaks within the first few days before gradually subsiding. This inflammatory response is a normal part of healing. Keep the incision clean and dry, follow all dressing change instructions provided by the surgeon, and watch for signs of infection like redness, pus, or increasing pain.

Promoting Mobility and Preventing Complications

Early mobilization is highly encouraged once cleared by the medical team. Assisting the patient with regular turning in bed and supporting gentle walking exercises can significantly enhance circulation and lung function. These activities reduce the risk of deep vein thrombosis (DVT), pressure ulcers, and postoperative pneumonia—a common concern in immobilized patients.

In addition to physical support, emotional encouragement makes a meaningful difference. Celebrate small milestones, maintain a calm environment, and ensure the patient stays hydrated and eats nutritious meals to fuel recovery.

When to Seek Immediate Medical Attention

Caregivers should be alert to warning signs such as sudden confusion, severe headache, weakness on one side of the body, difficulty speaking, or prolonged seizures. These could indicate complications like stroke or cerebral edema and require urgent evaluation.

By staying proactive, informed, and compassionate, family members can greatly contribute to a safer and more effective recovery journey for Moyamoya patients after surgery.